27 Aug 2015
“I have accepted fear as part of life specifically the fear of change, I have gone ahead despite the pounding in the heart that says: turn back.”
ERICA JONGRead on »
What is it like living with cerebral palsy? I cannot truly answer that question as for 46 years of my life I never knew that's what I had. It was only in March 2009 that I was finally diagnosed.
How did I feel as the child then, the adult now? Those times were enormously difficult for me. Some days I felt isolated, angry, cheated, misunderstood and frustrated. Other days I felt insular and alone. It wasn’t something my family talked about. “There was never anything wrong with me.” It was never brought up unless I talked about it then it was quickly dismissed like hot cakes as if the condition didn’t exist. But it did!