I believe it takes a different thought process for us to feel at ease with what we have to deal with. For me it was even harder to transition into something I knew nothing about, particularly as the symptoms I had to deal with still existed, regardless of whether I understand their origin or what those symptoms are.
Moving on, any condition we deal with, won’t just affect the person with the condition. Anyone we come into contact will also have to deal with the condition. Fast forward, perhaps the best way of transitioning into something permanently, is to grieve for that something we’ve never had. I think on an unconscious level, I must have somehow thought about or done that.
As parents we expect our child to be born normally, but if something happens to change that, we need to be able to face the reality that any expectations we had for our child, may never be met. I’m not really sure what my parents thought, what their expectations were around my disability, because my disability was never aired.
It hasn’t stopped me being positive and believing that all families must focus and embrace a different path together, so that they help their child or sibling. Although a daily uphill struggle can bring about different challenges, when certain challenges are overcome, it can be very rewarding.
Although this wasn’t my life, it never stopped me thinking about my life in that way. It’s what families should do, even if it’s not done. Grieving for what we can’t have or have what we can’t change, is the only way I know to successfully transition into living and being comfortable with a different path or role. Letting go.