In 2009 when I first found out I had Cerebral Palsy, I had no idea about Cerebral Palsy. I was in the doctor’s surgery last night when I noticed there were no details or information on Cerebral Palsy in the waiting room at all. The surgery had information leaflets and some available local groups for the following:
Diabetes; Tinnitus; Alzheimers; Deafness; Drug abuse; Parkinsons; Osteoporosis; Fibromyalgia and Cervical cancer. Many babies are still being born with Cerebral Palsy and since I was born, the rates haven’t declined and yet there are no pamphlets in my doctor’s surgery to read up on the condition.
There is, however, a Cerebral Palsy charity in England whose aim is to bring all disabilities into the public domain. The Society has since changed its name to Scope and lends and offers support to those with Cerebral Palsy and disabled people in general. They also provide sheltered workshops and Day Centres where disabled people can meet up.
Scope’s ethos is about equality. Rightly so they want people with Cerebral Palsy and other disabilities to have the same rights as non-disabled people, but unfortunately this is still not being achieved in society today. From my own experiences, having faced prejudice, society still does not accept people who struggle with disability.
Disability doesn’t always come in the physical form, it’s never just about the physical implications. There is a gap in society for information sources on disabilities like Cerebral Palsy. Some of the conditions I have referred to above are probably not seen or classed as a disability.
Perhaps that’s why there is more information and local information support groups available for those conditions. I am just wondering how many of us deal with what we deal with, without local support groups to help us?
There was no support group for families whose child or sibling was growing up with Cerebral Palsy in my area.