A late diagnosis

23 Jun 2016

Finding out later in your 40’s that you have Cerebral Palsy isn’t the same as finding out at the age of 2 to 3 years old.

When we’re diagnosed with something as a child we have our lives ahead of us to come to understand and adapt, to be able to deal with the condition and that helps us find an acceptance, even if we don’t fully come to terms with it.

I knew something was wrong, but I had already unconsciously reconciled that I may never get to know. Never knowing what I had and having to wait to find out, meant it would go on to take me years longer to adapt, when I eventually did find out.

Although it took me years to work out my symptoms, I was more concerned about the lack of interest. When anyone shows interest, they show they care. That mattered more to me than the disability itself.

2 Responses to “A late diagnosis”

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  1. Brad 24. Jun, 2016 at 8:10 am #

    I can understand how difficult it must have been for you to find out in later life what you should have know as a child.

    You have turned around that negativity around for both yourself and others and that is admirable.

    • Ilana 24. Jun, 2016 at 9:16 am #

      Thanks. Those weren’t the easiest of times. I felt angry and let down that those who should have been supporting me didn’t, but in all of those years, I never gave up hope that one day I would find out.

      I was quietly optimistic that one day I would find out and knew it was right for me to know. It has allowed me to build on that, whilst helping others also and for that I am enormously proud and grateful.

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