Ever since I was diagnosed with Cerebral Palsy over a year ago, I have worked tirelessly to find out as much as I can about what I am dealing with, but the more I meet with a brick wall, the more determined I am in my fight to find out what I know about my condition.
I don’t know how far back, but as a young adult I always worked around logic. If something makes sense and I understand it, I usually go with it making it my own, before working out my next challenge. The problem is that I know what I deal with is logical to me, but because there is little or no information out there, it’s very difficult to bring closure let alone acceptance and that is what I need to do.
I knew that when I started all of this I wasn’t guaranteed anything, but in many ways it has made my life even more frustrating. When we’re have no information, we tend to muddle through without asking questions, we just accept that we are where we are. In the next couple of days I am expecting a response from the Neurologist I went to see a couple of weeks ago.
He has kindly agreed to look at my brain scan to see if he can shed any more light on what the scan says. I am not guaranteed to know any more than I already know, but having got this far, at least I know the Specialists I have spoken to know how frustrating this is for me.
Speaking my own truth on how I feel with others listening, brings a little more comfort.