Having Cerebral Palsy for me was always going to be difficult for me. There is little to no information out there and as I’ve said, I was never under any illusion that I may not find some of the answers to my questions.
My blog was bound to bring about a mixed response of comments. I haven’t ruled out some research in the future. After a full consultation and examination with my Neurologist, but my Neurologist’s letter was a culmination of me writing to him over a couple of months, looking for more answers from him. He was both kind and sensitive and understanding of my frustrations.
My last letter to him asked him to tie up all the loose ends of our discussions. I asked for his honesty and that’s what he gave me. But unfortunately, with honesty sometimes comes disillusionment. Sadly, honesty can also bring about disappointment.
My Neurologist didn’t rule out the possibility that research taken on in the future, may bring more answers, but for now his honesty has left me with the contentment that I’ve done well to get this far and must be happy with that. I hope that one day I will find my answers on what I deal with.
Where we don’t have answers, others need to have and continue to give support, so that we can grow emotionally. I never look at things negatively, but I can also see why living with Cerebral Palsy may leave me with many reasons why it’s hard to stay and be positive.
I can’t change where I am with this, all I can do is work on my emotions to help me deal with what I deal with. We probably all know a little about the condition, but until Medical Research starts researching the condition, we must be accepting of what we have and what we deal with.