More sensory issues

I’ve never understood why I always had to be in a routine, until I came across an article from someone with Cerebral Palsy who has the same sensory issues as me. Because of my particular brain damage, anything that is new or unfamiliar may sometimes seem scary, because my brain isn’t being provided with the right signals to give accurate feedback.

When I find myself out of a routine, and out of a routine that’s familiar, what was familiar becomes totally unfamiliar to me, which can leave me somewhat overwhelmed and panicked. I’ve got used to it of course, but it seems highly frustrating for those around me, who must work to my routine and that makes it worse for them.

I also have the same kind of feelings if I’m running late on appointments, get up late on a morning and when I deal with difficult circumstances that I must find a resolve on. It’s so frustrating to have to stay in a routine that’s familiar, but at least I know I’m not the only one with Cerebral Palsy who deals with this issue, so that in itself is normal.

For me it has become a normal part of what I have to deal with, so I feel much better for knowing now.


9 Jan, 2014

6 thoughts on “More sensory issues

  1. Brandon has sensory processing disorder and frontal lobe brain atrophy. He has the same symptoms as you. If he gets out of his routine he goes nuts, gets angry and rebellious.

    I seem to have a little of it myself. I like routine and when I’m out of my routine I’m lost. If I get up late it seems like my whole day is wasted.

    With Brandon we just follow a routine as best we can, so that means anyone new (like a new nurse) has to learn his routine and not mess it up with new things. With me I try to follow my routine and schedule as best I can.

    I get anxious when things don’t go as planned. Being late really irritates me. I’m always 15 minutes early for my appointments and Brandon’s. Just go with the flow is the best thing I can tell you.

    Do some breathing exercises when you feel out of sorts. That’s what I do.

    1. Thanks Lisa. I do go with the flow but it’s not always easy for others, because they find how I deal with things irritating. I’m happy with the way I handle things though.

      Generally speaking perhaps if we were all a little more tolerant with each other, we’d work through all of our issues together without getting frustrated or irritable.

      I know how you feel Lisa with what you deal with. Keep up the good fight.

  2. Well I know that I tend to like a routine myself, but I can understand that it is a lot easier when you’re used to a routine, which can be a difficult thing when dealing with others.

    I have heard that people with brain injuries do have this issue at times, which would make sense. People may not understand how important it is for you, but that’s because they’re not dealing with the issues that you have to deal with!

    Hopefully you have family and friends who will at least try to be more understanding about what you need to do to be more comfortable doing the things you need to do.

    Hope this makes sense!

    1. Thanks Randy. Yes what you’ve said makes total sense and I agree with you. You’re absolutely right, I’m not sure people do understand fully because they’re not dealing with what I deal with, so it can be somewhat frustrating.

      I think you’re right we should all be more understanding with what we deal with and if we cannot be understanding, at least try.

  3. Well Ilana, I can tell you that you are not the only person that has a slight problem with change. I am a creature of habit. When something changes in my world it seems to make a disruption and that makes me full of anxiety and fear.

    Some people just handle change differently; not one way is better than the other. We are all different, so that keeps me from beating up on myself for being so closed off in my thinking.

    1. I agree with you.

      I tend to reflect on change, not in a bad way though. As soon as I know I have change to deal with I learn everything there is to know about the change I’m going to have to deal with, even if the change doesn’t directly affect me.

      As soon as I’m more informed, the dust settles and I get on with adapting to it. Change is and can seem scary, but the more we know about it, the less scary it becomes.

      Yes we’re all different and will deal with change differently. I agree.

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