More thoughts on my CP

I sometimes think that living with Cerebral Palsy is like living behind a mask. Only someone with Cerebral palsy will truly understand what that means.

It’s so difficult for me to work through my day without feeling as though everything is a chore. I periodically switch off to my leg spasms when I’m tired. I find it difficult to work conversations and periodically find myself switching off, or have difficulty connecting in the first place. All that does is frustrate my family even more.

I get to that point, where I physically cannot move or motivate myself. I think generally because of the lack of understanding of what I go through; it’s very easy for others to comment or feel they know how someone like me would feel. I generally remain upbeat, focused and positive more times than I’m not, but feel that I’m on my own most of the time.

It’s very hard for me to continually motivate myself, but that’s what I try to do. As a child growing up with no support that is exactly what I had to do, but the older I get the more challenged, all of this becomes. Emotionally it’s hard to switch off from the psychological problems associated with the condition.

There are days I feel I’m done with it, then I refocus and I’m back dealing with my thoughts again. It’s a challenge being challenged. I tend to need to keep working at it. It’s beginning to tire me out, it’s also a constant chore.


2 Sep, 2011

4 thoughts on “More thoughts on my CP

  1. Because growing up I was always around kids that were able bodied and I was always the one who had CP, I suppose people got used to it.

    People that have known me for years forget I have a disability because I do not let the disability define who I am. I just get on with living my life. CP is just part of what makes me me. There are a lot of other factors that make me who I am.

    Sure I struggle but most people with or without a disability struggle from time to time. That is what life is all about. It is overcoming those struggles that makes life interesting and rewarding if you can do it. Stay positive and you can do anything.

    1. There is an element of truth in what you say Randy, but these are not my experiences. I think the positive role model you had from your mother made the belief in you stronger, which meant you could go out and live your life with cerebral palsy and that has made a big difference in your attitude.

      There is an element of acceptance from some people, but not all people are ready to accept what we deal with. You were lucky in many respects. There is still prejudice out there as far as disability is concerned.

      This is all so different for me. You had a completely different upbringing, I muddled through mine. I am pleased for you though.

  2. I agree it is difficult for someone without CP to fully understand what it is truly like. It is an important part of what makes you, you.

    I doubt that you would be doing so much to help others had you not found out about your CP and that should help you through difficult times.

    1. I think you’re right. I probably wouldn’t be running The CP Diary. It has made me who I am today and am humbled by the site’s success; but dealing with CP doesn’t come without its problems.

      I think if there was more understanding I would be better equipped to deal with all that I deal with, without feeling as though I am being judged all the time.

      If I’d had the support too that would also have helped me cope better, through its ups and downs.

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