My first real blog

My Story on the site tells a little bit about me. No two days are the same for most people, but living with Cerebral Palsy means that every day can be different. The condition throws up so many feelings that I deal with, which makes life a little tough sometimes.

What I don’t get is how so many Specialists who deal with children living with the condition say that the condition is non-progressive. Since research hasn’t been taken past the age of 18, how would they really know. As the brain ages, the muscles will deteriorate, so how does that make Cerebral Palsy non-progressive?

Unfortunately, there is little or no information out there, but I will never stop looking, reading or writing about Cerebral Palsy and putting what I know on my site. I live alongside Cerebral Palsy, but it doesn’t define me. My site has the potential for me to bring closure on certain things.

The CP Diary gives me a platform so that I can talk about my feelings, put information out there and get some feedback from others who perhaps share similar experiences with me. Even if other people’s experiences differ from my own, we can help and support each other.

Over the days, weeks and months, once I get the hang of the site, I will add to my blogs. Please feel free to comment on any of them. It is only when resources are pulled together that we can change the way we feel about what we deal with and eventually how others may perceive us. Education and support are both very important tools.


18 May, 2010

2 thoughts on “My first real blog

  1. Closure is an interesting thing. How is something closed when it is talked or read about every day? Maybe closure has more to do with putting things in the right places within us.

    When I think of my son who had CP and then passed away, I feel pain. I must feel it.

    I don’t want some kind of closure where I do not reflect and grieve, but I try to put it in the right context. It doesn’t permeate my entire life, but it has its own sacred place.

    1. Thanks Terry. Yes, it sounds a good way to bring part closure. .I am a firm believer that time is a great healer. Once we have gone through the process of reflection and we’ve been able to grieve, I believe we begin to open the floodgates for the happiest of memories.

      I believe that our loved ones pass that they’re out of pain from having to endure pain this side of life through illness and in your son’s case, a disability; but that he is completely healed the other side of life.

      I also believe over time we can cultivate a sacred place in our heart for our loved ones.

Leave a Reply

Your email address will not be published. Required fields are marked *