I have been and am still trying to piece together everything I should have known and still know very little about what I deal with.
Myself and others with Cerebral Palsy will deal with issues around Sensory Integration. Sensory integration is the mental and physical framework within which our nervous systems respond to sensory input, so that we respond accordingly. It enables us to understand the significance behind a particular movement, texture or sound.
When a child has a brain injury, their perceptions aren’t balanced and therefore will either have a decreased or an increased ability to process. In my own case I have heightened reactions and difficulties with textures, foods, touch, smell, taste and sound.
The good thing is I know what I’m dealing with now, but the bad thing is other people having to conform to what I deal with and that can prove enormously difficult, particularly as nothing of what I deal with is clearly obvious so it’s easy to forget the problems exist, so I am continually having to point things out.
My hearing is the worst. Conversations take place and yet I have no recollection of those conversations and that often gets me into trouble, when others think I’m not listening, but I’m actually not hearing what’s said. Simple conversations one a one to one that don’t involve too much concentration I seem to be okay with, but conversations that are more strategic and involve more dialogue I struggle with.
Over the last 7 years I have become more, which has meant I’ve had to learn as I go on the job, to understand the way I function and that’s been difficult, because I’ve had to work everything out for myself.
It would be like getting to know me for the first time and not really knowing what makes me, me at all.