Random… but today’s thoughts

There is a train of thought that if you’ve never known anything different, then it must be easier to live with what you have to deal with. On paper that would seem true, but in reality I feel it’s very different.

On the contrary, we live amongst family, friends and people in the community who don’t necessarily live with a disability. That makes it harder in some respects because we see a more perfect normal, when we know for us that will never be.

I have constant reminders lurking from my past. When I was growing up, I was aware that I didn’t walk heel toe like all the other kids. It used to bother me that my shoes would wear down differently.

It also bothered me that my father kept telling me to pick my leg and foot up, because I constantly dragged both. He used to make a point of standing behind me as I walked, just to remind me.

Creating and running  my site has been a tremendous help, being able to explore and understand my experiences in the way they happened, has been the catalyst of me being able to accept my life too.

But most importantly are the friendships I have made along the way with friends who are keen to explore their own difficulties through my blogs.


6 Oct, 2010

8 thoughts on “Random… but today’s thoughts

  1. You said your CP is mild. I have always considered myself lucky because I have seen much worse cases of CP than mine.

    Sure there is some things I cannot do (like ride a bike) but there were also things that I was told i would never do that I have done. Like drive a car (without hand controls). I would love to go up to that lady today and say look at me no hand controls. I was told that at 16 and I learned to drive at 23 after taking driving lessons. I also lived on my own for 4 and a half years which my father never thought I could do.

    Though sheer determination and willpower I did it with a lot of help from my friends. I always go back to a saying my mother had, ” where there is a will there is a way.” Never give up. Believe you can do it and you will.

    1. Randy, glad you got to do all the things you knew you could do. I am very lucky that way too.

      My CP is mild enough to allow me to go out and live my life the way I choose. I think you are right that with determination and willpower, there will be things we or others with CP can do, but we also have to be accepting of the things we know we can’t.

  2. My CP is mild enough to allow me to go out and live my life on my terms, but I still get frustrated and depressed about not being able to do stuff like “normal” people.

    1. I totally understand your thoughts Bill. I was very frustrated and angry for a very long time. I must have been a nightmare to live with!

      Instead of continuing to live that kind of life, I decided to be pro-active instead so that I could learn to be positive. Staying frustrated made me even more frustrated.

      Neither of us can turn back the clock on our lives, but we can be more instrumental in learning to live with ‘us’ and embrace what we have. It does help to have positive support around you.

  3. When I was diagnosed with diabetes they told my parents I would probably have all kinds of problems by the time I was 18, if I made it to that age I would be lucky. I was only 8 when I was diagnosed. But I made it and I bet the odds so far.

    I grew up with diabetes so I adjusted pretty well. My problems are FMS/CFS that I also have. I can’t function like others and that bothers me. I can’t do what I use to do and that gets on my nerves! I do push myself and I get into trouble.

    But I feel like if I didn’t I would slow down so much I wouldn’t be able to do anything. I would love to be able to go out with friends, but I really can’t, I get tired too early. I would also like to be able to clean my house in a day like I use to but I’m lucky to get one area cleaned.

    1. Lisa I think we all have constant reminders from childhood that we live in our adult lives that we have to deal with and continue to deal with.

      I do think, however, that there comes a time where we just to have to compromise and accept our problems so we can deal with them so that we can function.

      Dwelling too much on our problems won’t allow us to focus on anything else.

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