More thoughts on aging with CP

Ageing with Cerebral Palsy doesn’t please me. I have a pit in the stomach feeling every time I think about it.

On the whole I feel I do okay, but it’s stumbling across everything for the first time and having to deal with those issues that I find frustrating. It’s not just that what I deal with is for life, but as I age and my brain slows down, so will my Cerebral Palsy.

One of the problems with Cerebral Palsy is that the doctors can’t fix us. On our part, we must accept that our brain doesn’t work properly and I believe that it is now beginning to have a knock on effect on my physical and mental health too with everything that I deal with. When someone with Cerebral Palsy is totally cross-wired nothing works.

A plug that is wired incorrectly can never work. Today I couldn’t physically motivate myself and although it’s not a regular occurrence, it is getting harder to be able to do things on a morning. When I have the right support I have a little more motivation.

I used to be able to get myself up and out for 8 am on a morning, now I am lucky to be up and out by 10:30 am. It’s a combination of brain fatigue and multitasking that I struggle with. When I have too much to do or think about, my brain simply switches off.

I hate the feeling it brings when I have no motivation to help me get through my day.


21 Nov, 2010

4 thoughts on “More thoughts on aging with CP

  1. Don’t feel so bad, I too have no motivation to do most things. Now with the puppy my hands are tied to her and I am not sure what to do. I hope that your CP doesn’t trouble you so much.

  2. You’re a very strong person and I know you can get through anything.

    I get depressed when I think of how I used to be up by 6:00 and have all my chores done by noon. Now I’m lucky to get moving well by noon. I know how you feel. This getting older is for the birds! I don’t like it at all.

    I’m trying to be graceful about it, but still think it sucks! The chronic fatigue is bad enough, but add aging in the picture makes it worse. Hang in there Ilana. You can do it!

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