I am just wondering if anyone out there with CP relates to these problems as well. I would love to hear from you.
Unfortunately it’s very common for people like myself who have Cerebral Palsy to experience abnormal sensation and perception. This is something that I have experienced all of my life, although I have only been able to make sense of it since my CP was diagnosed and I’ve done more research. The source is the central nervous system damage. No two people with CP will experience exactly the same sensory problems, because different parts of the brain are affected.
It’s also common for children with CP to have visual and hearing problems. This is different from having a physical inability that prevents someone being able to hear or see things. When a child has a visual processing deficit, it means that they have a hard time finding the words for objects they are viewing. If a child is asked to go and get an object, they might look at it and then say they can’t find it. This is because they are seeing it, but their brains are not processing what’s in front of them.
Similarly hearing integration problems are the same, the child hears what you say but the brain does not process it in a way that is meaningful. Indeed it may take several minutes for what you have said to click with the child and make sense. With little help out there and with our CP symptoms differing, it’s very hard for others to accept this is what we genuinely have to deal with on a daily basis.
People find it difficult to understand how CP can affect us in these ways and in my experience I am not sure others will ever truly grasp these implications.