Extra pieces of the jigsaw

I’ll never know now because it’s way too late in the day, but it would have been that I would have had a little more to go on had my father and my consultants over the years discussed my disability and my presenting symptoms. You couldn’t make up what I’ve had to go through.

Cerebral palsy is the physical condition, but along side that I have Sensory Processing Disorder symptoms that are …

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7 Nov, 2018

My exercise routine

Growing older with cerebral palsy doesn’t come without its difficulties. Taking advice over the years from consultants who thought they knew what was best, like walking barefoot potentially hasn’t been the best advice.

Although walking barefoot nowadays has a lot to do with earthing, (connecting to the Earth’s natural energy by walking on grass barefoot) the consultant wasn’t referring to earthing. He wanted to make sure …

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3 Nov, 2018

What we take from childhood

As a child I learned very early on that we don’t have choices. That as the adult we get to choose, but we must choose wisely.

We don’t get to choose how our parents bring us up, but we do get to choose how we use their choices to better ourselves. That we can’t choose the behaviour of others, but that we are instrumental in choosing …

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31 Oct, 2018

Understanding & forgiveness

In our early years we can’t know or equate what our parents emotionally deal with or why we get the life we get.

We are only able to filter views through our own prism, we’re not mature enough that comes with age. But our early experiences can and do affect us deeply. If parents find it difficult to show or give love, that will …

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27 Oct, 2018

Persistent qualities

Thoughts about my disability are never far away and is the reason for another daily blog. I’m not sure how old I was when it became clear to me that even without my disability, I would have had little opportunity around an education and travel. I would have had to have had a different culture and parenting to achieve it.

Looking back, it was only on the back of my persistence that I eventually found out what had been wrong with me for all of those years. The sad reality is that I lived through all of my experiences not knowing …

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23 Oct, 2018

Facets of my disability

The truth is I have never been properly assessed, but if I were to have been properly assessed and a percentage added as part of that assessment, I would estimate that I am 70% mentally and 30% physically disabled.

Although I have never highlighted or thought about autism and Asperger’s as part of my disability I deal with both. I make what I deal with look easy, the key difference being I have learned to adapt and conceal some of my symptoms, including my inability to feel, which comes from my brain …

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22 Oct, 2018

Overcoming barriers

Initially we create and put up barriers to protect ourselves, but that can only work for a finite time, sooner or later we have to take control.

I’ve had to overcome barriers in my own life on my disability, barriers over judgments on my disability and how I present. I’ve had to overcome barriers on failing in school. The more I failed the more …

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19 Oct, 2018

How the body works

My experiences always bring about a new thought process as part of the original experience. If I think it’s helpful because it brings about a new understanding or a new way of looking at a situation, I write about it.

Being continually measured as a child, I was always being told that my hips were straight and that my leg length issue was coming from a shortening from the knee to the ligament on my left side, that my leg …

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14 Oct, 2018

Why I am uniquely different

Knowing what makes me, me is cathartic and it vindicates me. I’m okay that I know everything about cerebral palsy and my neurological symptoms that needed to happen, but I’m not okay with how long it’s taken me to get to this stage.

Whilst we all have multiple intelligence, strengths and weakness in different areas, people on the autism spectrum will have extremes. They will be particularly skilled in one way of seeing the world and will be …

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10 Oct, 2018