Cerebral palsy is never far from my mind. I hate how my life is governed by the condition and digestive problems. Being premature and struggling with digestion problems mean I can’t plan ahead, do days out, or do holidays well.
Just going for a walk interferes with me being able to function normally. I hate being tired and having to concentrate so much on my stepping, losing concentration anyway and tripping up. It takes a couple of hours for me to recover from a half hour walk.
Unfortunately, my frustrations are my family’s frustrations too. They’re irritated, I am tied to the condition and there’s nothing I can do about it. Because the condition is mild it also makes what I deal with more difficult. It’s not like a broken leg where everyone notices and the sympathy is there.
I find myself having to fight to find a place that fits in with everyone, for them to be okay with what I deal with and I hate that.