I was always going to have a platform to write about my symptoms and experiences, because I never knew about my diagnosis or understood my symptoms and because karma would eventually correct that wrong.
Now 8 years into a diagnosis and I am still learning about how my symptoms present neurologically, I’m not done with it; why I present a certain way and why I will always be tied to my neurological symptoms.
But that’s all others need to know. That we must allow anyone disabled to present the way they present, no matter how hard that is. Sadly, having always struggled to understand my neurological symptoms with no support, left me irritable, frustrated and angry, primarily because of other’s misunderstandings towards me.
After my initial diagnosis and now with a vast amount of research behind me, knowing I am as I am because I have Sensory Processing Disorder, has brought about a new calm. Where people like me with a disability have understanding, there may still be frustration from others, who find it difficult to accept the way we are, primarily because they fail to accept themselves.
But knowing anyone who deals with a disability, large or small takes a different kind of understanding, one which can test resilience, patience and tolerance. Being around anyone who deals with a disability, is not perhaps always a life others would have chosen for themselves, not to mention the emotional battles that potentially comes with that life.
The practical costs of anyone sharing their lives with someone disabled is huge, but when it comes to any form of disability, I’m not sure how many of us consciously think about that and how it all plays out. Unless you’re working with the disabled and you’re coming in with a different viewpoint, sadly there may be an element of biased unconscious reckoning.
Of course, it’s only when the experiences set in, the emotions take a knock that we either cope, or we begin to struggle.