Living with a disability isn’t easy. But living with symptoms you know you have, but know nothing about is even harder. Knowing you have symptoms and not understanding your symptoms or struggles are even harder still.
A disability being brushed under the carpet, buried… never spoken about, meant I would never get to talk about my physical or neurological difficulties growing up. It’s not what any child with a disability should have to go through, regardless of their circumstances.
Although my blog has given me an outlet to talk about my difficulties, my experiences and how I feel about my life and what happened to me, away from that my disability is still very much buried.
Perhaps I need to get my head around that fact that, the fact that will never change. That what I had as a child, is what I have now. Not talking about my disability away from my blog was and still is my life.
It used to bother me, but it doesn’t now. I am lucky, I have a platform and I get to talk and have my say. In a way, I right a wrong on all of experiences. That’s all I need.