I believe that to try to make head or tail about our lives, we need a certain amount of reflection to help us understand everything we need to know.
If I had to write myself a letter on my thoughts and feelings about how I got to this place, this is how my letter would go:
‘I have never been so proud of someone as when you learned how to adjust into your life, even though you never knew what was wrong with you or how your disability would play out.
Although you were angry and frustrated for much of your formative years, because you didn’t know what you were dealing with, you have turned that anger and frustration into something much more positive. Even with the lack of support, you understood your life enough not to complain or moan about your disability or ever ask, why?
Being born with a disability meant you were always going to be different to your siblings and the other kids and where they would take the things they could do for granted, you were grounded enough to understand that you were different. You bore it well. Underneath the anger and frustration was a kind, caring and compassionate girl waiting to come out; with little understanding from others without questioning why you were even angry in the first place.
Living with anger was enormously difficult because deep down you were not that child. Yes, you had your moments, but those moments were never about you, but about other people’s non-communication of the issues you faced. Even with your struggles, you had something inside of you that set you apart that was clearly waiting to come out. The nice thing is you don’t brag, you don’t gloat; you come to understand.
Your ability to think and turn your thoughts into something treasured for others to read, has also made you into the person you are; but it was there all the time. You may have been born with something that you later found out to be Cerebral Palsy, but you are certainly not defined by it.
Instead, you are defined by this very unique talent that is not only helping you, but is also helping others in the form of The CP Diary, your blogs which have become your legacy.’