At the age of 2½ I was being treated for a spastic monoparesis, although I didn’t know I had ever been diagnosed.
Then at the age of 46, after I had arranged an MRI scan, I was diagnosed with the same condition. When I was referred on to a neuro physio, she noted that two of my limbs were affected, not one, which made my diagnosis spastic hemiparesis, not monoparesis.
I must have unconsciously been inquisitive about the first diagnosis, because I found myself looking at the notes from my last consultation with a new specialist who collaborated with his team to assess the scan results. His letter clearly states the birth injury problem.
It’s hard to believe that not only was I unaware of the original diagnosis, but it was also diagnosed incorrectly. Had I have known my diagnosis, I would have been living with the wrong diagnosis thinking it was right and will never have stopped to questioned it.
It’s been 8 years since my MRI scan and 7 years since my last consultation with a new specialist. The correct diagnosis is ‘mild hemiparesis cerebral palsy’.
The original diagnosis never made any sense to me because I have an abnormal variation in muscle tone on my left side, not spastic or floppy limbs. Years on and now finding out about my diagnosis as a child, made no sense.
I had no working muscle mass on my left side and yet I was diagnosed as a ‘spastic cerebral palsy.’