At the age of 2 I was being treated for spastic Monoparesis cerebral palsy, although I didn’t know I had ever been diagnosed.
Then at the age of 46, having arranged myself an MRI scan, I was diagnosed with the same condition, but he didn’t specialise in cerebral palsy. I was then referred to a neuro physio who noted that two of my limbs were affected and not one, which made my diagnosis spastic hemiparesis, not monoparesis.
Learning about the first diagnosis at 2 never really made sense. I found myself looking at my notes with my new specialist who collaborated with his team to assess the MRI scan results. Not only was I unaware of the original diagnosis as a small child, but this new diagnosis was also incorrect.
I now know for sure that the correct diagnosis is a Mild Hemiparesis cerebral palsy, because that is synonymous with an abnormal variation in muscle tone. The original diagnosis never made any sense because I do have an abnormal variation in muscle tone on my left side, not spastic or floppy limbs.
I’m not sure how the specialists missed as a child that I had no working muscle mass on my left side and yet I was diagnosed as a ‘spastic cerebral palsy.’