At the age of 2½ I was being treated for spastic Monoparesis cerebral palsy, although I didn’t know I had ever been diagnosed.
Then at the age of 46, when I wanted to find out what was wrong with me and arranged an MRI scan, I was diagnosed with the same condition. But when I was referred to a neuro physio, she noted that two of my limbs were affected, not one, which made my diagnosis spastic hemiparesis, not Monoparesis.
I must have been unconsciously inquisitive about the first diagnosis, because I found myself looking at the notes from my last consultation with a new specialist who collaborated with his team to assess the scan results. His letter clearly states the birth injury problem.
I can hardly believe that not only was I unaware of the original diagnosis, but also that it was incorrect. Had I have known my diagnosis, I would have been living with the wrong diagnosis thinking it was right and would never have questioned it.
It’s been 8 years since my MRI scan and 7 years since my last consultation with a new specialist. From looking at the notes, which I have now only re-read, I now know for sure that the correct diagnosis is Mild Hemiparesis cerebral palsy.
The original diagnosis never made any sense to me because I have an abnormal variation in muscle tone on my left side, not spastic or floppy limbs. But it’s all I’ve known. Years on and finding out my diagnosis as a child made no sense.
I had no working muscle mass on my left side and yet I was diagnosed as a ‘spastic cerebral palsy.’