At the age of two and a half I was being treated for a spastic monoparesis, although I didn’t know I had been diagnosed.
Then, at the age of forty-six, after I had arranged an MRI scan, I was diagnosed with the same condition. When I was referred on to a neuro physio, she noted that two of my limbs were affected, not one, which made my diagnosis spastic ‘hemiparesis’, not ‘monoparesis’.
At the time of diagnosis at forty-six, I must have unconsciously been inquisitive about the first diagnosis, because I found myself looking at the notes from my last consultation with a new specialist, who collaborated with his team to assess the scan results. His letter clearly states the birth-injury problem.
It is hard to believe that not only was I unaware of the original diagnosis, but it was also incorrectly diagnosed. Had I known about my diagnosis as a child, I would have been living with the wrong diagnosis thinking it was right and would never have stopped to question it.
It has been eight years since my MRI scan and seven years since my last consultation with a new specialist. The correct diagnosis is ‘mild hemiparesis cerebral palsy’.
The original diagnosis never made any sense to me because I have an abnormal variation in muscle tone on my left side, not spastic or floppy limbs. Years on, and now finding out about my diagnosis as a child, it made no sense.
I had no working muscle mass on my left side and yet I was diagnosed as a ‘spastic cerebral palsy.’