I will be continuing my research for alternative therapies, but felt I needed to write this blog today.
Having spoken to a friend yesterday about our childhood experiences and my living with a physical problem, my friend couldn’t quite believe that it had taken 46 year for me to find out that I had cerebral palsy and thought it quite bazaar that I wouldn’t have known. I woke up at 4 am thinking about it.
When I was around 2 years old, I went to see a Pediatric Specialist who specialised in helping children with cerebral palsy and I now have a letter in my possession that clearly states that he was treating me for Spastic Monoplegia. The diagnosis has changed since then, because I have two limbs affected. It’s not plausible or possible that my parents took me to see someone because I had problems and yet they didn’t know what my diagnosis was.
I believe they knew what my diagnosis was. They wanted me to fit in with my siblings and felt that I wouldn’t if I had have known. It would have helped all of us to know. My father has intimated that. For me, it would have helped me understand why I couldn’t do things, why I struggled in school, why I struggled with walking and many other difficulties.
Growing up, I should have had the support, instead of my pleas being ignored. It’s scary when I look back to think this has been my life.