It’s a small world. Having gone to the doctor last week for a routine blood test with the practice nurse, we made light conversation that turned to us talking about cerebral palsy.
It turns out that her daughter was 13 weeks premature and although she wasn’t born with cerebral palsy, like me she’s had complications from being premature that she’s had to deal with. I resonated with her greatly. We went on to talk about ageing and how hard it is, with no clear options or understanding as to what we may have to face long term, with what we both deal with.
At 25 on my father’s insistence I was finally discharged from the hospital and was told to go away and live my life. I never gave his comment much thought until now, when I realised how hard it has been for me to get to this point. Looking back I can see how insensitive his comment turned out to be.
As far as the practice nurse was concerned, she was very kind and suggested I speak to the Patients Liaison Service who may be able to help me with any questions I had on my cerebral palsy. She has certainly given me something to think about.