Being prepared

It’s true that our formative years don’t always prepare us for the life we have yet to come, if we haven’t had the support; but through maturity and emotional growth we adapt into adulthood.

My sensory issues are part of the equation and compound my problem. Some of the bigger issues, which would seem pretty straightforward to someone else, blow up ten fold and make what I have to deal with bigger. It’s easy for me to become overwhelmed and totally unprepared when it comes to moving forward.

When it comes to the smaller more mundane every day issues I’m fine, but through sensory impairments, the bigger issues have the potential to exacerbate and change how I see and interpret the world and that makes what I deal with very scary.

Depending on what the issue is, the issue can leave me slightly panicked, particularly if I’m given a fait accompli and there is no general discussion about the issue. Even though the issue may not consciously bother me during the day, if it isn’t resolved by the time I sleep, it wakes me, overwhelms me and won’t go until I deal with it.

As a child, I struggled to get rid of bad thoughts. Looking back now I can see that my sensory issues were always part of that equation. Sensory issues that are part of the Cerebral Palsy scenario, are something I understand now.


29 Aug, 2015

4 thoughts on “Being prepared

  1. I have the same sensory issue. I tend to worry too much about some problems. I feel like there’s no light at the end of the tunnel.

    I wonder if it’s because dealing with the physical and emotional aspects of CP is already overwhelming and any other small issues added to the equation just throws us overboard.

    1. Awww thanks Maria. I was told by my Neurologist when I was first diagnosed with Cerebral Palsy 6 years ago… that after the initial damage, the brain rewires itself and it’s this rewiring that can lead to changes in sensory differences.

      What you feel and deal with Maria are real sensory issues.

  2. It must have been very difficult for you when you had no explanation for the sensory issues you had to cope with and how you felt; and how you related to the experiences you describe. At least you now have those answers and that should go some way to helping you cope with these same issues.

    I like Maria’s explanation that as you are already dealing with so much; that something else kind of ‘tips you over.’ While I can’t personally relate to that, I can fully understand Maria’s description of what you cope with.

    1. Thank you. Yes it was and still is a constant battle to keep those bigger issues that create such feelings in check.

      Perhaps in another few years, people will come to understand more fully what Maria and I have to deal with. There is still very little out there that explains.

      A lot of my explanations I’ve had to interpret myself. I believe every word.

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