Lockdown is bringing its own challenges, even more so because the premature UK easing of lock down, is reinforcing my realities around my cerebral palsy disability and the fact that just wouldn't be an option for me.

My 'big deal' disability

I know that with an already compromised immune system, even if it wasn't too early to ease lockdown, having to self-isolate is something I have no choice on, which means Covid-19 and my disability is a big deal, but I don’t want it to be.

When I look at my disability in the whole, around a compromised immune system that isn't always evident, there is very little for you to look at, but there is no getting away from how much more mentally and emotionally disabled I am. Through my words I make it look easy.

Acquiring the tools

Yes, for anyone having to self-isolate with their partner these are such difficult times, made even more difficult when you didn't know or acquire the tools to help you cope. It is also made worse, because I am vulnerable and high risk; my life is literally on hold for as long as it needs to be.

Autism

Emotionally with autism I don't feel equipped, autism always makes that process worse. I should be more equipped than I am, I should have been given the tools. I wasn't disabled enough not to understand what was going on. I understood everything.

Most people who read this blog

went on to read these blogs next
Date 18 March 2024
Author Ilana Estelle

The Underdog

It is not uncommon for people to face challenges or doubts about their potential, especially when they've not been encouraged to succeed. However, it is essential to remember that your worth and capabilities aren't ...
Read more
Date 12 March 2024
Author Ilana Estelle

Twin Loss, Autism and the Pandemic

Losing my twin in the pandemic has had a profound effect on me, a loss that has deeply affected every aspect of my life. The absence of my twin has left a significant void, one which I am struggling to fit back into. The ...
Read more
Date 10 March 2024
Author Ilana Estelle

Anticipatory Grief

Grieving when you haven’t lost someone is known as anticipatory grief. It was part of me growing up with something I didn't know I had until I was in my forties, finding out I had cerebral palsy, then finding out in my fifties ...
Read more
1 2 3 582

Leave a Reply

Your email address will not be published. Required fields are marked *

Receive regular updates

Enter your details below to be the first to receive updates on new articles on my blog.