Cerebral Palsy and Covid_19

Lockdown is bringing its own challenges, even more so because the premature UK easing of lock down, is reinforcing my realities around my cerebral palsy disability and the fact that just wouldn’t be an option for me.

I know that with an already compromised immune system, even if it wasn’t too early to ease lockdown, having to self-isolate is something I have no choice on, which means Covid_19 and my disability is a big deal, but I don’t want it to be.

When I look at my disability in the whole, around a compromised immune system that isn’t always evident, there is very little for you to look at, but there is no getting away from how much more mentally and emotionally disabled I am. Through my words I make it look easy.

Yes, for anyone having to self-isolate with their partner these are such difficult times, made even more difficult when you didn’t know about your disability. It is also made worse, because I am vulnerable and high risk; my life is literally on hold for as long as it needs to be.

Emotionally and mentally with autism I don’t feel equipped, autism always makes that process worse. I should be more equipped than I am, I should have been given the tools. I wasn’t disabled enough not to understand what was going on. I understood everything.


4 Jun, 2020

6 thoughts on “Cerebral Palsy and Covid_19

  1. This is why I seriously worry about how my daughter is doing. We’re not in touch, and it has been causing me a lot of sleepless nights.

    I’m sure she’s stressed out and worried about everything herself, but there isn’t much I can do to help her. My only comfort right now is that she lives out in the country with not many people around.

    I am sure she’s not thinking about what I could do to help her and until she does there won’t be anything I can do to help her out.

    1. Thanks Randy. Yes, I can understand why you’ve been having sleepless night. It’s taken me a while to get my head around it also.

      I hope your daughter makes contact with you. She’s lucky she is able to live in the country. I have just had it confirmed by our NHS that I must self-isolate now for 3 months.

  2. We are still very much in the grip of this pandemic, although you wouldn’t think so seeing so many maskless people out there. I’m glad you’re not fooled by the easing of restrictions.

    So please keep doing what you’re doing to remain safe. The CP Diary family will laugh and cry with you everyday until this pandemic is over.

    1. Thanks Tim. Yes, autism makes being fooled difficult and the pandemic isn’t easy. It would be easier if I didn’t have the understanding.

      With my impaired emotions through cerebral palsy, (I am more mentally and emotionally disabled than I am physically) I don’t have the ability to move this away. Problems get bigger until they get smaller.

      I am grateful though that I have my website in these incredibly difficult times. Being able to write out my thoughts and what’s making me feel anxious is enormously helpful.

      Governments are very much responsible in bringing the people they govern together, they are also very much responsible for us coming through this pandemic.

      Our two leaders and the nature of their leadership makes everything so much worse. Both leaders are toxic and are not the voice of reason. Neither are suitable for the job in bringing us through the pandemic.

      They are adding to what already are stressful times and that is making my anxiety worse. That and knowing I could be house-bound indefinitely until we’re through this.

  3. It must be very scary being classed as ‘vulnerable’ but with all your friends at The CP Diary you’ll be okay. You need to do what you are comfortable doing and if that means staying at home, then that’s just fine.

    All I ever hear and read now is how this government and that government is easing restrictions as part of their ‘roadmap’ to recovery. What a load of tosh.

    The UK government has silenced its own scientific advisors and we are told what they want us to hear. We all know the death rate here in the UK is massive and much higher that the politicians tell us.

    Officially it accounts for over 10% of deaths globally and that is just the official figure. That is a criminal indictment of doing too little too late and we now run the risk of another spike in deaths, due to easing of restrictions, all because the politicians know it has been badly handled and the public are uneasy.

    1. Thanks. Yes, as you say, the UK government don’t seem to have a problem with their handling of Covid_19, or the fact that the amount of deaths in the UK amounts to 10% of deaths globally.

      Although they could be forgiven for not understanding the enormity of the virus, because it is completely unprecedented, they are not forgiven for their slapdash, shoddy and cavalier attitude in their handling of the virus.

      The UK have single handedly managed to divide not only their government and opposing parties, but people also and as a result, social media sites have become political and toxic.

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