Cerebral Palsy in the summer

I sometimes feel as though I am controlled by cerebral palsy. How I would choose to live my life is not how I get to do it, particularly around clothes I like to wear.

I have always struggled to find clothes that I like, to fit around my condition. I was never keen on skirts because of the lack of muscle mass on my left side. As a child I would have loved to wear open-toe sandals, or flip-flops in the summer. I would also love to wear three-quarter length jeans with pumps. Instead I have to wear clothes that cover up, and I hate that.

Although Mum bought me flip-flops because my sisters wore them, it was obvious I couldn’t hold on to them. She either didn’t want to come to terms with the fact that I had different needs, or she wanted me to be the same. I remember telling her that I couldn’t keep my flip-flops on and trying to hold on to a sandal was near to impossible.

I am lucky that my writing allows me to evaluate and bring acceptance to a lot of my experiences, including my clothes. When I talk about the things I know I couldn’t change, writing about them make me feel slightly better. I simply try to dismiss the guilt and accept that’s how it was.

Although I tend to have to work around my wardrobe in other ways, it can get difficult in the summer months.

27 Apr, 2011

4 thoughts on “Cerebral Palsy in the summer

  1. I cannot wear flip flops either as they will not stay on my feet.

    That is alright because my feeling about my feet are bad. I feel I have the ugliest feet on the planet.

    I tend as well to stay away from the beach as I am not a water person. Almost drowned three times in the past. Not going for number 4.

    1. Ditto on the flip flops. I can swim but choose not to because other people have a habit of staring at me, or they did!

      We’re also critical of our own bodies and how we see ourselves isn’t how others see us. Thanks for posting Randy.

    1. Yes of course, but for us it is what it is. We cannot turn back the clock on what happened on our birth dates.

      My feeling is that all we can do is accept it’s not going to be any different and be happy with that, as hard as it is.

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