Ever since I was first diagnosed with Cerebral Palsy, I have worked tirelessly to find out as much as I can about what I deal with, but the more I meet with a brick wall, the more determined I am in my fight to find out what I deal with.
Ever since I can remember I have always worked around logic. If something makes sense and I understand it, I go with it. The problem is that I know what I deal with is logical to me, but because there is little or no information out there, to verify my logic on what I know I deal with.
I knew that when I started my journey to find out what it was I was dealing with, I wasn’t guaranteed a diagnosis, let alone an understanding of my symptoms, but in many ways, it has made life even more frustrating. When we have no information at all, we tend to muddle through without asking questions and accept where we are.
Speaking my own truth for the first time brings a little comfort. Just having someone to listen for the first time, helps.