Disability thoughts

I never understood what I would have to deal with or how much energy it would take for me just to be able to function in my life.

I’ve heard it said that someone with Cerebral Palsy uses 3 to 5 times more energy than someone without. I have my limitations, but everyone must also remember I work with my limitations and that unfortunately often goes unnoticed and can cause added stress.

That also doesn’t play out in other areas of my life very well. Disability often works against those of us who for others to look at wouldn’t know there was anything wrong with us. A severe disability people see, a broken leg people see; anything that stands out which is obvious people see.

For people who deal with something that isn’t obvious, there will always be potential for what we deal with to be overlooked and ignored, because society and people in general tend to have sympathy for people whose disabilities are completely obvious.


11 Feb, 2015

10 thoughts on “Disability thoughts

  1. I agree. Unfortunately I suspect it will take a long time for anyone with any disability to be treated fairly and equally. It will happen with each generation.

    I have seen changes in equality since I was a child, but it is a long process. I’d like to think as a society we are working towards it.

    1. Thank you and I agree. I believe how we cope with disability starts in families and I’m not sure how many families get that right. There are clearly families who take on the supporting role; but not all families will do that.

      Anyone dealing with a child with a disability will also need support from the community. Unfortunately some of the responses on my site with regard to families are testament that families don’t always get things right.

      My experiences and my life is testament to that.

  2. I don’t want people to have sympathy for me. I accept my disabilities and they are not at all noticeable.

    I try to live my life like a normal person, because if I dwell on things I get depressed.

    1. Thanks Lisa. I’ve always thought of myself as normal and live my life normally; very similar to how you see and live your own life.

      You’re absolutely right, it is important not to dwell on what we deal with, because as you rightly point out doing that would make it easy for us to get depressed.

  3. Our society is primitive in its treatment of people with disabilities. If you don’t fit into a particular set standard of beauty, people become invisible outcasts.

    I would love to see more positive betrayals of people with disabilities in the media and society at large; our society needs to understand that everyone is a member of that group.

  4. Dealing with my physical limitations is trying already. Then add people’s lack of understanding and it can be overwhelmingly stressful.

    I don’t expect them to fully understand what I deal with but at least show empathy and support.

  5. Yes, it would be great if people were more sympathetic when dealing with other people, whether they have a disability or not!

    People don’t often think that someone may have difficulties, even when they aren’t so obvious, like you said. If a person is in a wheelchair then people will usually try to be more helpful. The biggest problem seems to be that if you don’t appear to have any physical symptoms, people won’t think twice about how they treat you.

    Even when there are signs, like how my daughter has a limp and the way she holds her right arm, they still don’t give her a break; like being a little more patient when they’re walking behind her!

    Things have seemed to change with the way people with disabilities are treated, but there is still a long way to go. People have pretty much the same view of mental health issues, where the issues aren’t as obvious, they don’t think you really have a problem.

    Just because I look physically healthy doesn’t mean my brain works just as well as everybody else’s brain. It doesn’t help that people don’t like to talk about these issues, as I’m sure it happens with CP at times.

    People need to learn that other people may have issues and limitations that may not always be apparent. I think they should have a “life skills,” class that students should have to take in school to learn how to treat others!

    1. Thanks Randy. Yes my CP problems we’re never discussed as a child, let alone aired in passing. I’ve never been asked how I feel about what I deal with.

      You’re absolutely right. I agree with you completely. I think we all need to go back to basics on how we treat people in general, then treating people with disabilities will be a walk in the park.

      It’s not difficult to give people time, empathy or have compassion. I think the big problem is having empathy for ourselves. I believe we must learn to like ourselves first.

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