I have gone over this question so many times before, but like other conditions I think the answer depends on how I feel I’m coping. I manage my emotions.
When there is too much negativity around what I deal with, I feel worse about having it. There is very little information out there for us on how to help us cope emotionally. Our disabilities will also have a knock on effect on our families too and that has a ripple effect on us.
Siblings also struggle when the attention is taken away from them, with the focus turning to the sibling with the disability. When people don’t know how to help, they avoid conversations and that makes our disability less accepting.