Families together

I could never have imagined as a little girl that I would be writing and running a website. All I wanted, was to know what was wrong with me.

Knowing what was wrong might have brought more understanding from others, my family in particular, which meant I wouldn’t have had such a hard time trying to fit into their lives around my disability. The truth is they should have fitted into mine.

I would have been happy to settle for a diagnosis. Without knowing as an adult, I would still have wanted to know what my difficulties and symptoms were particularly around my neuro issues and which is why I’m doing it now. As a child it was obvious to me there were more to my struggles than met the eye, but sadly it was ignored.

I hated being labelled and without the understanding, I was labelled even more. Those were incredibly hard times, but being an inquisitive child I never stopped asking. Knowing will have brought me closer to my family because everyone will have known what I was dealing with. At least my siblings would have grown up with a better understanding of me.

People are not inherently jealous unless they feel they have something to be jealous about. Jealousy comes when attention is taken away. In my case the spotlight was totally on me. That when we fail to deal with issues or discuss what is clearly presented, there will be distance in families.

The sad thing is distances fail to be corrected. Siblings and parents have to want to correct the differences and that’s often a sticking point.


9 Feb, 2018

2 thoughts on “Families together

  1. Yes, it would have been nice to know what was wrong with me, seeing as my parents always acted like everything was okay when it definitely wasn’t.

    I was labelled very early on as being the sickly one and very spoiled by getting most of the attention, but it wasn’t because I did anything to make them treat me that way.

    They totally ignored their own issues which if they had addressed them, it would have made all of our lives a lot easier and I would have been able to get the treatment I needed, when I first needed it.

    Things could have turned out so much differently, which is what I so often get wrapped up in thinking. All of the ‘what ifs’ keep running through my mind, when I need to stay focused on the reality of what I can do now to make my life better.

    1. Thanks Randy. Yes, it’s nice that we can resonate with each other. Just not something you anticipate that you’re going to have to do as a child.

      It’s not how that is supposed to play out. We both know what should have happened. We know what didn’t happen and what we need to do now.

      I believe it’s always harder to look back and wish because then you get the ‘what ifs’ as you suggest in your response.

      We must feel the fear and get on with the job in hand of correcting certain aspects of our life.

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