I remember being told by one of the Specialists I was under when I was a small child; to go away and live my life, because there wasn’t much they could do with me. I had Cerebral Palsy.
Given the fact that so many babies are still being born with the condition, I like others probably feel as though we’re having to deal with this all by ourselves. Cerebral Palsy is global and yet there is nothing is being done to research into this horrible condition.
I feel as though I am part of a statistic. There are charities that help with people with disabilities such as Cerebral Palsy and social workers that also help people with disabilities. I would in no way take away credit from them; they do amazing work, but this isn’t fundamentally their problem; it’s ours.
Statistically what is so annoying is that we have a condition that affects 2 in 1,000 live births and yet we’re told to go away and live our lives as if what happened to us doesn’t matter. I for one would like to see is a little bit more empathy for what we deal with. I would also like to see more research into disorders such as Cerebral Palsy, so that doctors understand more about the condition as to why we all present differently.
There are many Cerebral Palsy forums with so many of us still asking questions about Cerebral Palsy and what we deal with, but there are little conclusive answers. There are no doctors researching Cerebral Palsy.
It’s a shame that my life and so many others like me have been reduced to one of the ‘forgotten children’ living with Cerebral Palsy.