This brain fatigue problem is driving me crazy, so I made a decision last night that I think it’s time to go back and see if I can get some answers from the professionals.
There aren’t any specialists in England who deal with adults with Cerebral Palsy, but having spent some of my time trying to piece more of my symptoms together, I want to know if what I think I am dealing with can be confirmed. When I first went to see my Neurologist, we had nothing to work on.
I came out eventually with a diagnosis and although he read my scan notes, it was a little difficult trying to piece everything together. I didn’t understand then some of the problems I had, particularly with sleeping. I always maintain that if we know what we’re dealing with, it somehow makes our battles with symptoms, far easier.
I also believe that when people know what we deal with, they tend to behave differently towards us. They become more accepting and sympathetic to what we deal with. It saddens and annoys me that I have the most common childhood problem and there are no answers yet on what I deal with.