Having Cerebral palsy isn’t about just my physical constraints, but my emotional and mental constraints too. It is because of these constraints that I have always felt as though I am living my life inside, looking out at the world.
I have already talked about some of my symptoms, but feel I’m on my own with my thoughts and understanding of what I deal with. Understanding comes from us, but for those who have never had to deal with a brain injury, they may find it hard to understand and accept the way we are or live our lives.
Living my life with Cerebral Palsy, plays out very differently to that of my family. There are times when I have brain fatigue and can’t focus. When I eventually find sleep, I have difficulty staying asleep.
Fitting my life in with cerebral palsy as an adult is a completely different ball game to when I was a child. As a child I had no responsibilities; so it was easier for me just to be me. I was also small so my symptoms weren’t as evident.
Out of the classroom I could deal with things, similarly to other children. The older I’ve got it’s become harder. I fit what I deal with in my life around my family and that can be hard sometimes.
There isn’t always the empathy or understanding for what I do deal with and that’s hard. However much others try to help, they’re not dealing with what we have to deal with and therefore don’t understand.
I believe that to be completely true of course, but we can still empathise and at least try to understand.