I’m still blogging on the subject of Cerebral Palsy and seeing my Neurologist went well, but I feel frustrated and let down now by those who were involved in my life as a child and who should have been protecting me.
A diagnosis would have been good, anything that allowed me to know what I was dealing with. A diagnosis would have gone some way to explain some of my difficulties. Having started the ball rolling last year when it was thought I had Cerebral Palsy, I had the diagnosis confirmed by a Neurologist, but had no clear understanding of my symptoms, so I have had to go back.
I am both cross and disappointed that where differences could have been made, particularly in my early 30’s and even though my family knew I was looking for answers, they still chose not to help. It was only when I was first diagnosed by a Podiatrist, then went back and told them that it was Cerebral Palsy I had been diagnosed with, I was told that they knew.
In the 60’s there was also a stigma attached to disability. Having had children myself, I know how it’s supposed to go and regardless of the stigma involved, your children are your children, they deserve to have the support, no matter how bad we feel as a parent.