Ignorance around autism

I always try to work through and understand what I deal with. Learning more about the fact that I have autism, helps me understand myself, but that only works if others want to understand me also. Yesterday I spent most of the day watching experts talk about autism on ‘YouTube.’

Because there is little understanding about the different degrees of autism and how we may present, it’s easy for others to judge us. On our part because we deal with autism and all we want is support, for others to care and for them to work on their understanding, for us to be understood so that we can live our lives and fit into our relationships moderately successfully.

Whilst we spend a lifetime working us out it doesn’t give others the right to behave badly because they choose not to understand.

Me finding out about cerebral palsy and bringing closure on that diagnosis at the age of 46 was always going to be the catalyst and open door for me having to understand the neurological side to the condition.

But and I go back to this, society needs to be open, caring and transparent about people with disabilities, particularly when it comes to disabilities that aren’t always obvious, as my case shows. Autism has many facets, ranging from mild to moderate to severe.

All of that said, there is a positive side to autism. Many of us find we have a gift. I appreciate having the condition, because it allows me to write, to do what I do with my website, but society must work harder at bringing people with mental illness together, to help families who need help just to function.

People like myself remind the world that mental disability is never that far away and that it is very much a thing. Over the years and to my cost, I know too well that autism isn’t something that can easily be ignored.

Personally, I hate how the uncertainties and mental confusion that come with the condition, make me feel.


9 Jan, 2019

4 thoughts on “Ignorance around autism

  1. Yes, people tend to be ignorant about things they don’t understand like autism and mental health issues. The only ones who get it are those who have to deal with the same issues themselves.

    I’m sure that being an empath has allowed me to better connect with people like my niece who has Asperger’s, but the rest of her family don’t seem to know how to connect with her, even though so many of them exhibit the same issues that they choose not to address.

    I was also able to connect with my daughter who has cerebral palsy, but she was raised by her mother and has chosen to shut me out of her life which is truly sad. I find it hard to comprehend why it is that people choose to ignore these issues when it’s a condition like any other.

    I think about it often when I see all these commercials about cancer treatments and how they get treated when it should be the same way for people who have things like autism and mental health issues.

    People seem to believe that we choose to be the way we are, when no sane person would want to have these issues and it isn’t our fault. I’m guessing these must be the same type of people who used to burn witches at the stake, for people who probably did have mental health issues.

    I’m coming to the point where I feel the need to write a few books about what I have been through, so that I can help myself and others better understand what it’s like to have to deal with so many issues.

    I’m not even sure if the message would get through to most of these people, but like you, I have to at least make the effort while I still have time left.

    It would be great just to be treated like a normal person who has a condition they never asked for.

    1. Thanks Randy. Yes, society goes through phases and there are those who I believe have a kind heart and genuinely care about other people. Even through my experiences, I still choose not to think that society is done for.

      I’m positive because it’s right to be positive, to see the good in people. But you have a point that more of us must think about. I love that you relate to your niece and that you help her.

      It’s clear you care and that’s all it takes. From what you say Randy, it sounds as though your nieces’ family are as damaged as she is and don’t want to know about her problems.

      Although your daughter is grown up now, her issues with her mother will have started when she was a child. Perhaps at some point your daughter will come back in when she’s sorted her own issues and life out.

      I’m not sure whether it’s evil or sad, when one parent poisons the mind of a child to get back at the other parent.

  2. There is no place for ignorance around any mental illness. That attitude should be relegated to the ark, but it is still commonplace unfortunately.

    I remember reading an article a while ago, by the children hospital Great Ormond Street, about school children’s ignorance around mental health and it said that almost half of 500 children asked could not name one mental health condition.

    Perhaps it’s not surprising that adults hold ignorant views. Thankfully, things are slowly changing for the positive, albeit very slowly and that is why your website is so important.

    Through all of your experiences, your positivity shines through.

    1. Thank you. Yes, there is no place for ignorance around mental illness.

      It’s sad that autism is on the increase, but what’s even more sad is people’s attitudes, we should want to put ourselves out to help others. Caring children become caring adults. It doesn’t take a lot of effort by parents to instil kindness into their children.

      I remember as a child being stared at periodically because I walked differently and instead of those parents talking to the child telling them it was rude to stare, they simply ignored their child’s comments.

      Whether anyone is physically disabled, or less physically disabled and more mentally disabled, there is no excuse for anyone’s ignorance.

      From your comment about school children it is clear parents need to do more to educate their children on mental health issues. If children are taught to care and understand the issues surrounding mental health, they will want to care and help others as adults.

      Although mental health is being addressed and mental health affects children also, those children not affected, need to understand mental health.

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