More Cerebral Palsy issues

Short, sweet and to the point I know cerebral palsy is the underlying issue, and the reason I’m struggling to move on. Some days I feel fine about it, but on other days it very much depends on what I have to deal with around the condition.

I have days where I seem to be more reconciled and those days seem fine, then I get to play back the tapes in my head, and then it’s not fine again. My emotional struggles with cerebral palsy are there because my emotional issues have never been addressed.

I have other childhood issues, but this one seems harder to reconcile because it’s been a 46-year struggle. There is a lot to let go of. Perhaps that’s not surprising after 46 years.


1 Aug, 2012

6 thoughts on “More Cerebral Palsy issues

  1. When I was young my disability was misdiagnosed and it led to a lifetime of pain and sorrow. Today I know what my limitations are and how to cope with my disease/disorder.

    I find great relief in my faith and now pray daily, it has given me hope.The prayer used most often is:

    “God grant me the serenity to accept the things I cannot change,the courage to change the things I can and the wisdom to know the difference.”

    I hope this may be of help or comfort when you are having a bad day, it helps me.

    1. I know how you feel. I love that particular quote, thank you for putting it on the site. I am sure it will help me too.

  2. I read this and I can relate to much of it.

    It’s hard for me to let go of the anger towards the doctors who treated me poorly. I remember a discussion with an immunologist two years ago, he said, “you don’t have Lupus” and I questioned about the possibility that it could come back positive through later testing. He replied with “you don’t have lupus.”

    Two years later, I’m diagnosed with a connective tissue disease and it may very well be Lupus. I think to myself, if they had treated me earlier, would I have arthritis in my knee now, but if I constantly ponder over what could have been, I wont get anywhere, si I must trudge on?

    Thankfully, it has only been a two year struggle and not decades long, but nonetheless, we all have our pain to deal with and we all have stories!

    Keep up with the posts! They’re very good.

    1. Thank you. I know how you feel.

      A while back I was diagnosed with Lupus myself and while the first blood test I had confirmed it was Lupus, they did another blood test in a different lab. The specialist wasn’t convinced the symptoms matched the condition. The second test confirmed it wasn’t. It turned out to be Keratosis Pilaris, which is another auto immune disorder and not what they originally thought.

      I can relate. It’s both very annoying and frustrating, but I honestly believe the medical profession have no idea about certain conditions which aren’t well known in the medical field.

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