Revealing yet more layers on my Cerebral Palsy diagnosis brings about new and unwanted thoughts. I wake up with thoughts about the process of how I got to this place and know deep down I’m not done yet. Not only was my ‘foot drop’ not referred to in any of my medical notes, but I have now learned that I have it because of a difference in leg length and a paralysis.
I have always known about the leg length difference. The paralysis I didn’t know about, but it does tie in with having little muscle mass or working muscle on my affected side. I have never been able to point my toes on that side, or equated it to the fact that I have paralysis on my left side.
That would explain me dragging my leg when I walked It would also go on to explain why I couldn’t pick my foot up. I also didn’t know until fairly recently when I discovered further correspondence that the Specialist I was under took advice from another Specialist because he had concerns that I was being overlooked and that is sadly how it’s played out through the years.
The response he got back was that if the parents weren’t interested, there was nothing he could do to intervene. That my parents sadly weren’t interested in dealing with my disability and that ties in with my understanding of what I had been told just before my father passed.