How would anyone feel being told that the reason you didn’t know anything about what you have dealt with all your life, is because one parent didn’t want to know? I now know that the questions I asked could have helped me deal with knowing earlier on that I had Cerebral Palsy.
This is new to me at nearly 48 years. I also believe that part of my family knew that I had Cerebral Palsy before I did. The seed was sewn. My path and struggles were mapped out, as I began to live my life in the most negative of ways. Throughout my childhood, I fleeted back and forth through bouts of anger and frustration.
I asked questions that were met with no responses and even to this day my father’s thoughts are truthful to him. He genuinely didn’t want do deal with my issues and therefore never spoke about it to me or other members of my family, even though I was under the constant care of specialists and physiotherapists.
To inflict that on any child is baffling. For a parent to decide not to tell their child what she deals with is incredulous. I was cut off from the world, society. That just knowing about my condition could have brought all that should have been afforded to me.
I also not only missed out on that support, but missed out on making proper connections with my family and although I have made myself stronger. I’m not angry, I understand why and it’s not my issue. It’s others’ issue of me.