I’ve never understood why I always had to be in a routine, until I came across an article from someone with Cerebral Palsy who has the same sensory issues as me. Because of my particular brain damage, anything that is new or unfamiliar may sometimes seem scary, because my brain isn’t being provided with the right signals to give accurate feedback.
When I find myself out of a routine, and out of a routine that’s familiar, what was familiar becomes totally unfamiliar to me, which can leave me somewhat overwhelmed and panicked. I’ve got used to it of course, but it seems highly frustrating for those around me, who must work to my routine and that makes it worse for them.
I also have the same kind of feelings if I’m running late on appointments, get up late on a morning and when I deal with difficult circumstances that I must find a resolve on. It’s so frustrating to have to stay in a routine that’s familiar, but at least I know I’m not the only one with Cerebral Palsy who deals with this issue, so that in itself is normal.
For me it has become a normal part of what I have to deal with, so I feel much better for knowing now.