I sometimes think that living with Cerebral Palsy is like living behind a mask. Only someone with Cerebral palsy will truly understand what that means.
It often becomes difficult for me to work through my day without feeling as though everything is a chore. I find it difficult to partake in conversations, particularly where more than one person is speaking. I often find myself switching off and all that does is frustrate me because I want to do what others do.
I think generally because of the lack of understanding of what I go through, it’s very easy for others to comment or feel they know how I feel. Generally, I try to remain upbeat, focused and positive, but it’s also very easy to feel I’m emotionally on my own sometimes.
It’s also very hard for me to motivate myself and although I manage, the older I get the more of a challenge it becomes. Emotionally, I find it hard to switch off from the psychological problems associated with the condition.
There are days I feel I’m done with it that Cerebral Palsy isn’t my friend, then I refocus again and things seem okay for a short while. It’s a challenge being challenged. The whole Cerebral Palsy thing is a chore.