My autism diagnosis report

Whilst my ASD diagnosis had been confirmed verbally at the end of my consultation, I have now received my report, which goes into 8 pages of detail that I need to work through.

Due to symptoms that relate to the following, my Consultant has diagnosed me with Asperger’s Syndrome within the Autism Spectrum Disorder.

  • Social Interaction;
  • Social Communication;
  • Flexibility of Thought;
  • Sensory Experience.

My Consultant has also hypothesised that the damage to my right frontal lobe received at birth would have made me becoming Autistic more likely.

My diagnosis explains things such as not being able to find the right words when I’m trying to communicate, having anxiety through ‘Flexibility of Thought’ and feeling out of my depth, out of control are all part of that.

Autism helps me understand why I need my routine and why I feel panicked when I am out of one. It explains why I have over reactions to touch, smell and sight and why I have under-reactions to hearing when someone is in close proximity to me, and why my hearing is exceptional when further away.

It explains why I am neither over and under on taste; why I have great ability in one area with my blogging and difficulty in many other areas. It also explains why I have intense and prolonged emotional reactions to situations, circumstances and issues and why I am excessively bothered by tags on clothing.

It explains why through ‘Sensory Experience’ I struggle with touch, why I struggle to look at or touch scouring pads, why I am irritated by loud noises that I haven’t anticipated or expected. It also explains why I struggle with spatial awareness; why I bump into things and why I have fallen down the stairs a few times.

Over the years through ‘Social Interaction’ and ‘Social Communication’ I have learned to compensate and have taught myself how to be sociable. Where I found it difficult to interact as a child, I am able to interact now. I find it easier when I have something that I need to talk about, or if someone else initiates the conversation with me first. Walking into a room full of people as a child was also difficult.

Having missed all my developmental milestones and given the various concerns, my neurological symptoms should have been dealt with by my parents, family, teachers and Consultants.

Fifty-five years on and there was more to my disability than just a cerebral palsy diagnosis and I’m still trying to get my head around the enormity of it all.

2 Feb, 2019

4 thoughts on “My autism diagnosis report

  1. My thoughts about how you have got to this place age 55 aside, I am pleased that your diagnosis helps you make sense of who you are.

    No doubt it will help those around you too. Overall I see it as a positive chapter in your journey.

    1. I couldn’t have got this far without an open-mind, positivity or looking for the right opportunities to find out about my disability including my neuro issues.

      I’m happy with having my autism diagnosis. It falls into place and completes the jigsaw finally, but it’s not up to me to change how others adapt into my life with Autism.

      Whatever disability we have to deal with, society and the world still needs to change their attitudes towards disability, but that has to start in our homes.

      As my ‘story’ shows not everyone has that.

  2. It does seem to be made much worse when you have a parent who expects you to act normally and acted like there wasn’t anything wrong with you.

    It ends up giving you a serious complex over time, since you’re always made to feel like there is something wrong with you, but they never really tell you what it is.

    My parents always expected us to act like nothing was wrong at home, and our lives were perfect, when that was the furthest from the truth. I have a very hard time with that concept.

    I may not have been the greatest father, but I never treated my daughter like she didn’t have the issues that she had. I’m sure that is why we have been able to relate closely on many different levels, since we have had similar experiences.

    I was only recently diagnosed with ADHD, which makes a lot of sense considering what I went through as a child. They didn’t talk about those issues back then, but I know that I always had a hard time focusing in school, on top of everything else that I went through.

    Kids were pretty much allowed to be downright sadistic, so I endured many years of bullying and abuse which never seemed to ever get noticed by anyone. There are a lot of things that happened that I still don’t like to talk about, so I had to learn very early on how to take the pain.

    It would also explain why I have somehow managed to endure being in a very toxic and emotionally abusive relationship, which has become the norm for me. Now I’m at the point where I need to learn how to move on from just existing this way, since nobody should have to live like this.

    1. Thanks Randy. Yes, we spend a lifetime learning how to move on. I think the lightbulb moment for me was when I began to realise that my failings in school weren’t down to me.

      And that’s when my perceptions and attitude changed permanently. But you are right issues weren’t talked about when you and I were growing up. But it’s good that those times have changed.

      Hopefully it will be easier for you with your recent diagnosis and hoping those around you will give you the support you need.

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Pre-order my new book

Many thanks
Ilana x