My autism symptoms

I’ve had a lot on my mind recently since looking through my medical notes again.

It is vital for any specialist to be informed about the child they’re treating. Had the specialist been told by my father, he will have come to understand that some of my behaviour traits fitted exactly into the autism spectrum.

My symptoms were overlooked because the interest from my father simply wasn’t there. Cerebral Palsy isn’t just about cerebral palsy. Through the brain injury it can include many other disorders such as Autism and Asperger.

Children with autism may struggle with the following:

  • Verbal and nonverbal communication;
  • Repetitive behaviours or interests;
  • Social interaction including the way they relate to others.

Children and infants who deal with autism, or infants don’t cuddle. They tend to avoid eye contact, don’t need or  like physical affection or contact. They show little interest in human contact and when held they may go rigid or limp, as a sign to go down. Children with autism will also struggle to form attachments.

As a child, I was both distant and aloof. Looking back, I didn’t know why, my family thought it was just me. That it was just me, rather than what I was dealing with. Children with autism also show unusual responses to sensory experiences, such as the way objects look or certain sounds.

Their routine is often regimented, their behaviour repetitive. Things tend to have been done a certain way. That sadly is me. Although symptoms will differ in each child exhibiting autism, one size diagnosis doesn’t fit all.

Symptoms usually range from mild to severe and will be different for each child. My behaviour traits fitted perfectly. All children with autism display social, behavioural and social patterns that are individual to them, but fit into the overall diagnosis of autism.

I find it irritating and sad that I have to work my presenting symptoms out. I will blog more when I find out more. But for now, I am happy I’ve started the process.

3 Dec, 2017

6 thoughts on “My autism symptoms

  1. Yes, it is very irritating and sad when you look back on your medical history and realize that you needed help, which neither of us ever got.

    There was no way that my parents couldn’t have known what my issues were, but they were always so much more concerned about what it would cost for treatment.

    I still can’t figure out why it was that they were so worried, since I’m sure we had health insurance through the state, seeing as we always seemed to get things like food stamps.

    I’m sure that your life would have been so much different too, if you had received the proper care and had been told that it wasn’t just you.

    Even though autism wasn’t well known back then, something would have been better than nothing as far as treatment, which they deprived you of.

    1. Thanks Randy. Yes, we’re here again with our tale of woes and although that’s not okay, in a way it has to be because it’s where we are.

      I have learned a different way to be now through my own understanding and agree with you wholeheartedly. I would never condone a parents bad behaviour in this way.

      As my mum used to say we don’t go to school to be a parent and that’s a cop out, but there is some truth in the saying, ‘that we parent as we’ve been parented, which is true in our case.

      In terms of my Autism, to be honest; it was odd, but never bad enough to warrant that kind of help, but in school I definitely needed help with learning, which I never got.

      All we can do is work on ourselves and continue to correct things for our own children. The past has gone, I don’t really want to dwell.

  2. As a child, you behaved that way because you smelled everybody’s rottenness, to be blunt. That something was wrong the way it was being handled, sadly.

    But in helplessness, you still made it to the light.

    1. Awe thanks Tim. Yes… I just never gave up. That if we believe for long enough our circumstances will change.

      But we must be instrumental and focused on those beliefs. It’s not enough to just sit back and wait without being focused on how things might change.

      When we just sit back, we’ll inevitably miss the opportunities when they arise. We have to be looking in the right direction.

  3. Our son received an official autism diagnosis about a year ago. We were told he had it, but no one really did a diagnosis.

    We were also told he would greatly benefit from ABA therapy. That was going to cost at least $40,000 and wasn’t covered by his insurance until a few years ago when our state mandated treatments for autism.

    To get into therapy he had to be tested and given an official diagnosis. They said it was going to take 1.5 hours to perform the test. The official doing it returned with him in 45 minutes, saying he was positive he had autism. He started ABA a year ago and we’ve seen some improvement, but I also attribute some of it to maturity.

    He also has sensory processing disorder, which is bordering on severe, and frontal lobe brain atrophy which affects administrative functions. Even though he has all this and more mental diagnosis, he is extremely smart.

    This year in school he started in 4th grade. Half-way through the year he was moved to 5th and will advance on to 6th grade in August and to a different school because he will be in middle school and things are very different here.

    He is in a special needs classroom and has a complicated IEP. So he is facing transition that will be hard for him. Add that to him being in early stages of puberty and the pre-teen stage and that spells trouble.

    A lot of the symptoms you give, applies to him. Has attachment disorder, delayed speech (can’t tell it now though) and wasn’t held much the first year of life due to medical issues, but enjoys hugs now.

    He also has ADHD, ODD and OCD. Always followed routine and changes to his routine affects him greatly. His behaviour is his biggest issue lately, especially in school.

    The one thing that we have problems with are some professionals who want to put him in a box with every other kid with his issues.

    We have to explain and get them to understand that he is totally different, due to all of his diagnoses. He has a very rare chromosome deletion also and is still the only one in the world with it. They really have no one to compare him to.

    From the outside he seems like a normal kid. A little small for his age, but seems fine until you really get to know him. I think he knows he has differences, but he is growing mentally slowly and seems to understand some things.

    He is such a strong willed child and we are so very proud of him. Sorry for writing a book!

    1. No problem Lisa. It’s nice to have you back on the site. Yes, I hear you and feel for you too. I think you’re right about medical professionals putting patients and their symptoms into boxes.

      Even if it’s not intended, it’s usually how it works. One size doesn’t fit all. One child cannot be compared to another. It’s wrong for specialists to make comparisons.

      What’s good here is that you’re not only aware of the pitfalls of what you’re dealing with, but you’re also hands on and know what you’re dealing with. You’re specific about those challenges.

      Although having a special needs child brings with its lots of frustrations, primarily because you have to raise your voice to be heard, as you know a child with special needs a lot of rewards also.

      Just keep doing what you’re doing. The important part is making sure everyone around you is on the same page as you. It’s important that you bring stability into your lives, so that you can all thrive together.

      Obviously it depends on the disability and the severity of the symptoms, but it’s important that as a special needs’ child grows, they understand why they are different.

      I know that would have helped me. I grew up knowing I was different, but never knew why. It irritated me and made me more angry than I was.

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