It’s an emotional strain living with cerebral palsy. Although I pride myself on coping quite well, it often depends on what’s going on in my life.
I tend to have a lot of things going on, so whatever I am dealing with at the time that becomes the support. I don’t dwell on what I deal with, I think I realised why from a very young age. That way I didn’t have to put anyone in a position where they felt they had to help. Other things seemed to take priority anyway.
I have always been independent, probably comes with the territory. I learned how to cope because I had no choice. I don’t think anyone who doesn’t have what I have, will truly ever understand what it’s like to feel what I feel. There is no information out there about the emotional side of what we deal with.
I never gave any thought about what it was like for others living with cerebral palsy, until I joined a cerebral palsy forum and came across people like myself who were living with the condition. I think when we deal with something other people have, we automatically have a natural empathy with each other.
Meeting with other people through social media sites has been such a positive and welcoming experience for me. For the first time I am able to understand what it feels like to know that I’m not alone.