My Cerebral Palsy

It was in my 40s that I was able to start piecing some of my cerebral palsy together. My parents were reluctant to talk about it, so I am having to piece everything together myself. It’s not ideal, but it’s something. It would take years and my mother’s terminal illness for her to open up for the first time, telling me about my birth.

It is usual for any new mum to give birth through the National Health Service, which is hugely experienced and well equipped. I now know that in my case through a multiple birth, cerebral palsy could have been prevented if I had been delivered by a midwife and not a consultant.

I find it incomprehensible and sad that society seems to be complacent about the fact that so many babies are born with the condition, rather than trying to find ways to reduce that number.

At the age of 46 when I found out I had cerebral palsy, my neurologist explained that the incidence of babies born with the condition is the same as when I was born. I find that staggering. Surely the medical profession should be improving its practices. We cannot afford to be complacent.

2 Oct, 2014

2 thoughts on “My Cerebral Palsy

  1. I agree with you. I know things can go wrong during the birthing process but you would think they would do things that would prevent CP, maybe prepare better for the birth if they suspect any problems might arise.

    I also think it was wrong for your parents to withhold information from you about your birth. Parents are supposed to be supportive of their children and I think it was important that you found out everything you could about your birth.

    I guess it was that generation. Things were taboo back then and not much was shared about sensitive topics. It was good of you to research and find out that you have CP.

    Most people would just accept the problems without finding out why they had it.

    1. Thanks Lisa. With us just having had Cerebral Palsy Day this post is even more poignant for me. Over the years I have learned to find a place; to understand.

      I think having come this far with the understanding that I have, I feel as though I’ve come full circle in both. I’m not so angry about it. Although there’s nothing I can do to change things, I have my understanding and that is important.

      When we can understand we have the opportunity to move on. I agree with you and you’re right, but sadly that’s the way things were done back then.

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