My first real blog

My story on the site tells a little bit about me. No two days are the same for most people but living with cerebral palsy means that each day is different. My condition throws up so many feelings that I have to deal with and that’s what I find difficult.

What I really don’t get about cerebral palsy is how so many specialists who deal with children with the condition say that the condition is non-progressive. Since research hasn’t been taken past the age of 18, how would they really know? I have already been told that as my brain ages, my muscles will deteriorate, so how does that make Cerebral Palsy non-progressive?

Sadly, there is little or no information out there, for those of us dealing with the condition, but I will never stop looking, reading or writing about cerebral palsy and putting what I know into my blogs. I live alongside my condition, but I will not be defined by it.

My website gives me a platform so that I can talk and write about my feelings, put information out there and hopefully get some feedback from other people who share similar experiences. Even if other people don’t have cerebral palsy and their experiences differ from mine, I believe we can still help and support one another through my blogs.

It is only when our resources are pulled together that we can change the way we feel about what we deal with and eventually how we perceive others. I believe education and support are both very important tools.

18 May, 2010

2 thoughts on “My first real blog

  1. Closure is an interesting thing. How is something closed when it is talked or read about every day? Maybe closure has more to do with putting things in the right places within us.

    When I think of my son who had CP and then passed away, I feel pain. I must feel it.

    I don’t want some kind of closure where I do not reflect and grieve, but I try to put it in the right context. It doesn’t permeate my entire life, but it has its own sacred place.

    1. Thanks Terry. Yes, it sounds a good way to bring part closure. .I am a firm believer that time is a great healer. Once we have gone through the process of reflection and we’ve been able to grieve, I believe we begin to open the floodgates for the happiest of memories.

      I believe that our loved ones pass that they’re out of pain from having to endure pain this side of life through illness and in your son’s case, a disability; but that he is completely healed the other side of life.

      I also believe over time we can cultivate a sacred place in our heart for our loved ones.

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Ilana x