Living every day with a condition we’re born into, where there is no cure is like living with a cloud over our heads. Because I have and deal with Cerebral Palsy there is and will always be less certainty over my health. There is not enough information out there on organ health and Cerebral Palsy, which I know is affected.
It is common knowledge that anyone with Cerebral Palsy uses 3 to 5 times more energy than someone without the condition and couple that with sluggish organs, there could be concern as we age. My health has always been something I need to address daily, so I can stay reasonably well and keeping it up is the part I find enormously difficult.
It’s the not knowing from one day to another how well I will be that makes the whole thing difficult. There is no let up and that has a tendency to weigh me down. Keeping everything else I deal with together, whilst I deal with any health issues is difficult, not to mention slightly scary.