Although I was late getting my cerebral palsy diagnosis, I have still had to work through all of my many neurological symptoms, what they mean and how they manifest themselves in me.
Even if I had have had my diagnosis as a child, the specialists wouldn’t have understood the neurological connotations, how my diagnosis would play out in comparison to someone else with the same diagnosis. The irony though, is that I had one diagnosis at two and a half.
I’ve had to painstakingly work through my symptoms on my own. A diagnosis for anyone with a disability doesn’t make us less or more disabled, but it’s a diagnosis that allows us to stop wondering, feeling frustrated, or choosing to be defined by it.
Any diagnosis will give others reason to misjudge or discriminate if they are that way inclined. I don’t conform to the stereotype of cerebral palsy because I’m not disabled enough and I am able to live my life, but I do think that sometimes works against me.
It’s not like a broken leg that people see, where they get to resonate, or offer sympathy. But I have had to work conform to fit into my life. For those who don’t understand our symptoms, they may be quick to judge, through a lack of understanding on what are our neurological difficulties.
Since finding out about my diagnosis 8 years ago now, I’ve spent years working it all out. What I write about in my cerebral palsy blogs, is who I am and my experiences as they happened, not necessarily in order.