I don’t normally do two personal blogs back to back, but felt I needed further clarification on my medical records.
I have become slightly agitated and angry at what I’m looking at, but it also doesn’t surprise me that there are gaps in my medical records between 1965 (the year I was originally diagnosed with Spastic Monoparesis) and 1977. In 1988, I was finally signed off at the age of 25.
In my last consultation with a new Consultant before finally being signed off, I was diagnosed with non-structural scoliosis, which happens because of a difference in leg length, so that would be correct. The point to this particular exercise is that I am able to fill in the missing gaps on the years where there is no paperwork.
I don’t understand why there are no records of my consultations between 1965 and 1977 because I had annual consultations in February with the same Consultants until the age of 15. It’s clear from my notes, the Doctors weren’t responsible for a lack of mediation in those consultations, but as soon as we left the consulting rooms, the trail went dead.
Apart from my mandatory yearly check-ups (which bizarrely aren’t in my records) my neurological symptoms and emotional issues were completely ignored. The Doctors gave up trying because my father just wasn’t interested. And where the doctors were treating me for mental retardation (learning difficulties) they wanted my father to observe me in school to make sure that I wasn’t falling behind with my school work.
It is clear I slipped through the net yet again, because my father chose to ignore those struggles too. It is also clear both the system let me down for not insisting my father come back in and deal with my disability and my father for using the fact that my disability was mild enough to ignore my needs.
Since being diagnosed with Cerebral Palsy at the age of 46 and now with an MRI scan and a few consultations behind me, I am able to piece my symptoms together, thereby helping me understand myself and why I present a certain way.
It is also now clear from my medical records that sadly I have lost these years, with no recordings or explanations of my struggles or consultations throughout those years.