How ‘My Story’ panned out is remarkable, but the fact that it took me so long to get to this point and for me to learn about ‘My Story’ and symptoms so late in life, is also remarkable. The fact that I’m still standing is even more remarkable.
Since my diagnosis at the age of 46, the more symptoms I have stumbled across the more irritated I have become. I have worked out that for thirty years, I have also been chronically and acutely ill. I was born premature, I have cerebral palsy, autism, asperger, anxiety, digestive problems and IBS. I’ve also had reflux since I was 28, which is now under control.
OCD is also something I know I have that I didn’t know I had and comes from autism. It was only when I was watching Chris Packham talking about his OCD and autism symptoms that I made my connections with both. As a child if I was bought any new clothes, they’d stay in my wardrobe.
Mum knew what she’d bought and would often ask me why I wasn’t wearing them. She would even go so far as to describe the item of clothing for me. It was an OCD trait brought about through autism that I also didn’t know I had.
But without working towards a better lifestyle with everything I deal with, I know I will struggle more. I need to keep it going.