I have written many journals about Cerebral Palsy, but because it has taken 46 years to find out, the feelings and uncertainties I should have had as a child, I now have with little or no hard facts to work with.
Originally I went to see one Neurologist who was more than helpful and who was willing to work things through with me. I had an MRI scan, was given a diagnosis, then referred to a Physiotherapist who deals with brain injuries. I came away knowing a little more, but there were still things I didn’t know that he couldn’t help me with.
I then went back to my doctor ,who kindly referred me to another Neurologist, for him to look at my brain scan. When I first came into the meeting, the Specialist hadn’t looked through the scan and said that at some point he would go back with some of his colleagues, to have a look and let me know his thoughts and would copy me in on my doctor’s letter.
I left the meeting with a little more positivity, having explained what I wanted and never gave it a second’s thought, until last Friday when I received a letter back from him, which was unhelpful. I need is for someone to work through the scan and try to piece together my injury, with some of the symptoms I deal with.
I believe this is why the Specialist didn’t outline more of these points in his letter to me. That he doesn’t really know the answers to the points I have raised and that’s fine, but I just need to know. I will go back and ask. I have waited 47 years to find out, I can wait a little longer.