I feel a little bit like a freak today, so much wrong and lots I have to deal with. Still dealing with my fall from Monday, nursing myself from that, but then having problems with IBS from something I ate last night, brings it home, just how sensitive and vulnerable I have become to what I deal with on a daily basis.
Some of my problems have been with me for a long time, but living in ignorance and not knowing means I’ve got to get on with the job in hand, without so much as a thought to all the long term consequences of what I deal with. I’m not giving up.
I have written journals on some of my problems, but as I educate myself more through relevant sites relating to Cerebral Palsy and each condition individually, it doesn’t seem so scary, but put them all together and the bigger picture becomes very scary.
I believe all my conditions are a by-product of being premature and having Cerebral Palsy. As I read through more research there seem to be correlations. Again, as a child I suffered regularly from bowel dysfunction. My conditions include, IBS, reflux, breathing problems and heartburn, bladder problems, water infections and brain fatigue.
I also have problems with my hearing. I hear but what I hear doesn’t usually register. Although I usually spend my days dealing with problems as they arise, at the back of my mind, I always tell myself that tomorrow will be a better day.